Is my vertigo Meniere’s?

(My doctor) says I have beginning of Meniere’s but I truly don’t believe so.  I only have one symptom, vertigo, no loss of hearing or ringing at time of the episode.  My vertigo comes on when my left ear is plugged and feels full of fluid due to allergies, (which I always have). Usually it hits when that ear is plugged and if I turn my head to the right or sleep on my right side, (ear that is usually affected) when I get up I feel a little off, then suddenly I get the spinning sensation even if eyes closed. Usually lasts  for a few seconds but better lying down.

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It can be hard to decide which vertigo problem a patient has when they first see a physician.  Often they have trouble describing the vertigo. They might say, “I just feel dizzy” and then when I ask them to describe the dizziness in more detail, they add “it’s really bad”. It’s not easy thinking of other words to describe what is felt inside unless very specific questions are asked. 

One of the most confusing decisions to make is whether the patient has Meniere’s disease, which is a serious condition that results in the gradual destruction of an ear, or another repeated kind of vertigo that isn’t nearly as dangerous, like BPPV (“bed spins”) for example. 

Meniere’s has four basic symptoms: hearing loss, ringing in the ear (tinnitus), fullness in the ear, and vertigo.  This very simple list overlaps with a lot of other conditions.  For example, an older person might have age-related hearing loss, with tinnitus from that hearing loss, allergies causing stuffy feelings, and positional vertigo.  Even though they have everything on the list, they do not have Meniere’s disease .  It is the subtle details that determine whether Meniere’s is the problem. 

In Meniere’s, the hearing loss, feeling of fullness, and tinnitus are all connected together.   In fact they are all different facets of hearing loss.  If you abruptly lose hearing in one ear, you will usually also hear a ringing sound in that ear.  The pitch of the ringing will match the tones that are impaired.  In Meniere’s, the hearing loss during a spell is in the low tones, so the “ringing” is more of a roaring sound, or the sound you hear when you hold a large coiled seashell to your ear.  It can sound like a jet engine or a vacuum cleaner.  People often say that the sound is so loud that it drowns out their hearing, but this is an illusion.  It is the hearing loss that results in the sound.  This can last for hours at a time, but when the sound eventually fades, the hearing also returns.  After many such spells, a different and more permanent hearing loss slowly develops, and there may be a different pitch to the accompanying more constant tinnitus. 

The feeling of fullness in the ear is also a part of the hearing loss.  If you suddenly lose hearing, you will feel a flattened, cottony feeling in your ear.  It’s rather like the feeling of getting water in your ear while swimming.  If your Eustachian tube gets blocked while flying, you can get a similar stuffy feeling and that also mildly affects hearing.  Unlike a blocked ear, however, you cannot “pop” your ear and get rid of the Meniere’s stuffiness.  It just gradually goes away as the spell ends. 

The vertigo of Meniere’s disease is unpleasant and nauseating, but the spinning is not as fast as in some other disorders like BPPV.  The spinning sensors of the ear shut off, and this results in a constant, quite steady spinning.  You can often see the environment spinning or shifting.  This is worse if you hold your gaze in one direction, and better if you look in the opposite direction.  Since the vertigo is  very long lasting, often for hours, it is typical to become nauseated.  Turning the head quickly when upright makes the vertigo worse.

Other conditions don’t have these more detailed symptoms.  Sudden damage to an ear causes hearing loss, fullness and tinnitus with vertigo, but these symptoms are constant for days to weeks.  All but the hearing loss usually decline over time.  BPPV causes short spells of vertigo brought on by lying with the affected ear down, and worsened when trying to arise.  If you also happen to have constant hearing loss and ringing from age, this still won’t mean you have Meniere’s disease. In Meniere’s, those symptoms mostly occur at the same time as the vertigo and last for long periods (up to hours).  Short bursts of vertigo when arising are  almost always BPPV, and being able to stop the vertigo by doing maneuvers proves it is not Meniere’s disease.   

Of course, no diagnosis is as easy as a few paragraphs can imply.  I have seen people start with BPPV, only to develop a destructive disorder of the inner ear as time goes by.  This means that having a hearing test periodically is a good idea if symptoms of hearing loss, ringing in the ear or repeated vertigo continue to occur. 

Drop Attacks in Vertigo Patients

If you have vertigo, you will have noticed that your balance can be so impaired that you may fall.  There are lots of other reasons for falls (fainting, for example), but if the fall is due to the inner ear there is one important characteristic:  you don’t lose consciousness before the fall.  In fact, unless you hit your head during the fall and get knocked out, you will be able to remember everything that happened before and during the fall.  This helps to signal that it was due to the inner ear. The inner ear can make you fall in more than one way, so the treatment depends on the type of problem you have. 

Read more: Drop Attacks in Vertigo Patients

The most common reason for a fall is the vertigo itself. If you have BPPV, for example, you might see the room spinning violently when you tip your head upward or arise from your bed.  If the room is dark, or you have nothing nearby to hold onto, this can make you fall.  When a spinning sensor in your ear turns ON suddenly, your body reacts by counter-balancing because it feels like you are spinning.  This is just an illusion, so all the reflexes to counter-balance instead throw you off to one side.  Once you have had several spells, you become less likely to fall because you learn to use touch to correct for these inappropriate reflexes. 

If your inner ear is destroyed by a virus or an injury, it is hard to walk at first because the environment will be spinning for the first few days.  Usually by touching a wall or other support surface you can remain upright.  However, even once the nystagmus and vertigo have declined, you may still fall if you close your eyes or enter a dark room.  When the gravity sensors of one ear are destroyed, the horizon will not seem level and will look a bit tilted.   You may feel as if you are being pulled to one side. Vision helps keep this feeling of tilt under control.  In darkness, however, you can’t use vision, and the inner tilting feeling becomes more intense.  Even a week after such an injury, closing your eyes can cause you to fall to the ground like a log, although to you it will feel like the ground came up and slapped you.  As the amount of tilt you see gradually declines over a few weeks, so will the tendency to fall over. 

Drop attacks are a late-stage effect of Meniere’s disease, which can gradually destroy all balance sensors, including the gravity sensors.  These attacks are very sudden.  It will feel like the ground came up and hit you, with very little feeling of falling.  This probably happens due to a mechanical deformation of the gravity sensor, causing it to suddenly generate a feeling of extreme tilting.  The world will appear to tip up sideways, and your attempt to stay upright will cause you to overcorrect and fall.  These attacks are so sudden and violent that you can be injured.  The treatment is to see an otologist to consider ablative surgery (destroying the balance function of the ear) so that no more attacks can occur. 

Muffled hearing and ringing in the ears

“I woke up with extreme nausea, the room was spinning, my eyes were extremely sensitive to light. I didn’t think much of it at the time, I had thought maybe I was coming down with a virus or that I was extremely dehydrated. A couple days after that I started to get migraines severe enough to end up in the ER… My symptoms were vertigo, dizziness, rapid heart rate, nausea, ringing in the ears and muffled hearing at times…I had also… (traveled) and once the plane was airborne the ringing started in my right ear again.”

Read more: Muffled hearing and ringing in the ears

Ringing in just one ear, a feeling of muffled hearing in one ear, and room-spinning vertigo are all classic symptoms of Meniere’s disease.  It is easy to diagnose once it has become severe because there will be permanent hearing loss in the affected ear on audiogram and balance function in that ear may show a decline in responses to caloric (warm and cold water) testing.  However, it is much harder to be certain of the diagnosis in early cases. 

In the early years during a spell, your hearing will be decreased.  The simplest way to test this is to rub your fingers next to each ear; the hearing will be muffled on the bad side. Or put an earbud up to each ear in sequence and listen for a change in tone or muffling of the sound. 

If the hearing loss during a spell is noticeable you will likely also be able to hear a low rumbling or roaring sound, like the sound you hear when holding a conch seashell over your ear.  This can get quite loud, meaning the hearing loss is worsening.  It can also be faint in the early stages.  The hearing loss and the tinnitus are two sides of the same coin. 

At first there is no permanent hearing loss, so if you have an audiogram it may look normal.  During a spell, though, there will be hearing loss, usually in the low tones.  After the spell resolves the hearing may return to normal.  Because of the vertigo, it may be hard to get in for testing while having a spell.  Talk to a local audiologist about getting permission to come in quickly when a spell happens and have someone else drive you. 

Barometric pressure changes, like what happens when flying, can change pressure in the inner ear and set off a spell.  A barometer can be helpful in warning of an impending attack.  Very low pressure (like a storm) followed by high pressure can be a trigger.

Headaches, especially migraines, frequently accompany Meniere’s disease.  There are several underlying conditions that cause migraine, so a workup by a neurologist is best.  The combination of headache and Meniere’s disease is frequently caused by an anatomic abnormality in the ear (endolymphatic hydrops) along with sleep apnea or any other cause of increased stroke or heart attack risks.  These include smoking of any kind, high blood pressure, autoimmune diseases and diseases of the vascular system. 

The cornerstone of diagnosis is to see a neurotologist (ENT specializing in the inner ear) and have a complete workup including VNG, audiogram, and any other tests they may recommend.